• »Bangor Home
• »EPIC Project

The EPIC Project

What is the full title of the EPIC Project?

Evidence into practice: evaluating a child-centred intervention for diabetes medicine management.

What is the short title of the EPIC Project?

EPIC Project: information for children and young people with diabetes.

What is the EPIC Project?

The EPIC Project is about the diabetes medicine management of children between 6 and 18 years old. With the help of children and young people, we are going to create a new information pack for children with type 1 diabetes and test it out in a randomized controlled trial. The EPIC project is run jointly by Bangor University and Cardiff University.

How long will the project take?

The project will take place over three years (2008-2011), in four stages.

What are the four stages of the EPIC project?

• Stage 1: We will look at the information that is already available for children and young people with type 1 diabetes.
• Stage 2: We will develop a new information pack for children and young people with type 1 diabetes with the help of children/young people with type 1 diabetes, and healthcare professionals who help to look after children/young people with type 1 diabetes.
• Stage 3: We will test the information pack to see if it is helpful for children/young people with type 1 diabetes.
• Stage 4: We will let other people know what we found.

Who will take part in the EPIC Project?

Children and young people with type 1 diabetes.

• Parents of children and young people with type 1 diabetes.
• Doctors and nurses who help to take care of children and young people with type 1 diabetes.

Where will the participants in the research come from?

We think that most of the people taking part in the project will live in either England or Wales. (Click here for a map of our recruitment sites).

Who is funding the EPIC Project?

The EPIC Project is funded by the National Institute of Health Research (NIHR) Service Delivery and Organisation (SDO) programme (SDO/211/2007).

Who are the main researchers on the EPIC Project?

Anne Williams (Cardiff University) and Prof Jane Noyes (Bangor University) are joint principal investigators. Dr Llinos Spencer (Bangor University) and Mrs Deborah Edwards (Cardiff University) are researchers on the EPIC Project. Rhiannon Whitaker is Trial Statistician.(NWORTH)

Does anyone else work on the EPIC Project?

Yes, many other healthcare professionals also give their expertise to the EPIC Project. These are:

• Peter Brocklehurst (MCRN)
• John Gregory (Paediatric Endocrinology)
• Lesley Lowes (Paediatric Diabetic Specialist Nurse)
• Carol Jackson (Children’s pharmacist) (link to: )
• Ian Russell (Ex-director of the North Wales Clinical Trials Unit) (link to: )
• Davina Allen (Policy researcher)
  
• Cynthia Carter (Specialist in children, communication and media)
  
• Rhiannon Tudor-Edwards (Health economist, Bangor University)
• Joanne Rycroft-Malone (Healthcare researcher, Bangor University)
• Mary Lewis (Lead nurse)
• Jan Sharpe (Children's medical illustrator)
• Mark Samuels (Roche)

Thank you to the following children for providing pictures for the website:

Cari Lliwen Williams
Lora Elan Williams
Llio Machno Williams

If you would like to draw a picture for our website, please send your drawing to Llinos Spencer, Fron Heulog, Ffriddoedd Road, Bangor University, FREEPOST BG35, LL57 2BR. You do not need to use a stamp.

Disclaimer

The views expressed on this website are those of the author and not necessarily those of the NHS, the NIHR or Department of Health. The NIHR SDO programme is funded by the Department of Health.